1. HIV+ Adolescent Regional Ethics Alliance
In 2006 and 2007, the Center for Biomedical Ethics continued its commitment to the HIV+ Adolescent Regional Ethics Alliance (HAREA), co-chaired by Elise Ellick and Mark Aulisio. Created in 2003 under the name HIV Positive Adolescents Ethics Consortium, as an inter-institutional, multi-disciplinary consortium to address ethical issues raised by the identification of and care for adolescents and young adults with HIV, the alliance is a project of the Center for Biomedical Ethics at Metro Health Medical Center and the Department of Bioethics at the School of Medicine at Case Western Reserve University. This consortium is inclusive of the three academic teaching institutions in Cleveland – Metro Health Medical Center, University Hospitals of Cleveland and The Cleveland Clinic Health System. We are also pleased to have the participation of The AIDS Task Force of Greater Cleveland and The Free Medical Clinic of Greater Cleveland.
Quarterly meetings were held in 2006 and 2007 to continue the process of shaping the group’s efforts and focus. Our intention is to develop the first consultative body among the major providers in northeastern Ohio for this special population. HAREA was convened to provide ongoing dialogue with respect to: informal discussion and case consultation to identify and review the many complex issues inherent in caring for HIV+ adolescent patients; determining policies to ensure best practices for case management; and service as an educational resource for those working with this population. The committee will continue to meet regularly in 2008.
The inaugural event for HAREA’s community outreach initiative entitled, “The Many Faces of HIV in Youth”, took place on November 9, 2006. It is intended to be the first of many Grand Rounds sessions that will rotate to other area hospitals within the alliance and to different departments within those institutions. The content of this first presentation was an assessment of where we are now and where we might be going. The second outreach is expected to be, “The Ethics of Shame” with adolescent specific illustrative case vignettes.
2. Mark P. Aulisio, Ph.D., and Jessica Berg, JD, Associate Professor of Law and Bioethics, chair and continue to develop the Research Ethics Consultation Service for the “The Center for Genetics Research Ethics and Law” (CGREAL). The Primary Investigator, Eric T. Juengst, PhD, received grant support for CGREL from the National Human Genome Research Institute (ELSI Centers for Excellence Center Grant). Dr. Juengst is an Associate Professor of Bioethics and Oncology at Case.