Publications

  • Anesi, G. L. (2010). "New Clinical Powers, New Ethical Questions." Virtual Mentor 12(10): 775-777.
  • Aulisio, M. P. and R. M. Arnold (2008). "Role of the Ethics Committee*." Chest 134(2): 417-424.
  • Aulisio, M. P., M. Devita, et al. (2007). "Taking values seriously: Ethical challenges in organ donation and transplantation for critical care professionals." Crit Care Med 35(2 Suppl): S95-101.
  • Berg, J., M. Mehlman, et al. (2009). "Making All the Children Above Average: Ethical and Regulatory Concerns for Pediatricians in Pediatric Enhancement Research." Clinical Pediatrics 48(5): 472-480.
  • Binstock, R. H. (2005). "The Politics and Ethics of Anti-Aging Science." Asia-Pacific Biotech News 9(5): 708-711.
  • Binstock, R. H. and J. R. Fishman (2010). Social dimensions of anti-aging science and medicine. International handbook of social gerontology. D. Dannefer and C. Phillipson, Sage Publications.
  • Binstock, R. H., J. R. Fishman, et al. (2006). Anti-Aging Medicine and Science: Social Implications. Handbook of Aging and the Social Sciences, 6th edition. R. H. Binstock and L. K. George. San Diego, CA, Academic Press: 436-455.
  • Binstock, R. H., J. R. Fishman, et al. (2006). "Boundaries and labels: anti-aging medicine and science." Rejuvenation Res 9(4): 433-435.
  • Callier, S. and H. Schmidt (2010). "Managing Patient Expectations About Deidentification." American Journal of Bioethics 10(9): 21-23.
  • Callier, S. L., J. Huss, et al. (2010). "GINA and preemployment criminal background checks." Hastings Cent Rep 40(1): 15-19.
  • Caulfield, T., A. L. McGuire, et al. (2008). "Research Ethics Recommendations for Whole-Genome Research: Consensus Statement." PLoS Biology 6(3): e73.
  • Cogdell, K. J. (2009). "Saving the Leftovers: Models for Banking Cord Blood Stem Cells." The University of Memphis Law Review 39: 227-252.
  • Davis, D. (2004). "Genetic Research and Communal Narratives." Hastings Center Report 15(1): 40-49.
  • Davis, D. (2006). Genetic Testing: Care and Consent, and Liability. Genetic Testing and Tort Actions. N. Sharpe, Carter, RF.
  • Davis, D. (2007). "Help! My Body Is Being Invaded by an Alien!" The American Journal of Bioethics 7(4): 60 - 61.
  • Davis, D., N. Gerson, et al. (2010). "Ashkenazi Jews: overburdened and overexposed?" New Genetics & Society 29(3): 241-260.
  • Davis, D. S. (2007). "The Changing Face of "Misidentified Paternity"." Journal of Medicine and Philosophy 32(4): 359 - 373.
  • Davis, D. S. (2008). "A Thoughtful Look at Disability." Hastings Center Report 38: 54-55.
  • Davis, D. S. (2009). Genetic Dilemmas: Reproductive Technology, Parental Choices, and Children's Futures. New York, Oxford University Press.
  • Davis, D. S. (2009). "The Parental Investment Factor in the Child’s Right to an Open Future." Hastings Center Report 39(2): 24-27.
  • Dressler, L. (2007). "Control and Use of Banked Human Specimens in Research.  Biospecimen Ownership Counterpoint." Journal of Cancer Epidemiology, Prevention and Biomarkers 16(2): 190-191.
  • Dressler, L. G. and E. T. Juengst (2006). "Thresholds and boundaries in the disclosure of individual genetic research results." Am J Bioeth 6(6): 18-20; author reply W10-12.
  • Edwards, K. L., A. A. Lemke, et al. (2011). "Attitudes toward Genetic Research Review: Results from a Survey of Human Genetics Researchers." Public Health Genomics.
  • Eng, C. and R. R. Sharp (2010). "Bioethical and Clinical Dilemmas of Direct-to-Consumer Personal Genomic Testing: The Problem of Misattributed Equivalence." Science Translational Medicine 2(17): 17cm15.
  • Fabsitz, R. R., A. McGuire, et al. (2010). "Ethical and practical guidelines for reporting genetic research results to study participants: updated guidelines from a National Heart, Lung, and Blood Institute working group." Circ Cardiovasc Genet 3(6): 574-580.
  • Farrell, R. M., M. L. McGowan, et al. (2009). "Patient Education and Informed Consent for Preimplantation Genetic Diagnosis: Health Literacy for Genetics and Assisted Reproductive Technology." Genetics in Medicine 11(9): 640-645.
  • Fishman, J. R., R. H. Binstock, et al. (2008). "Anti-aging science: The emergence, maintenance, and enhancement of a discipline." Journal of Aging Studies 22(4): 295-303.
  • Fishman, J. R., R. A. Settersten, et al. (2010). "In the Vanguard of Biomedicine? The 'Return' to the Art of Medicine in the Anti-Aging Movement." Sociology of Health and Illness 32(2): 197–210.
  • Foster, M. W., J. J. Mulvihill, et al. (2009). "Evaluating the utility of personal genomic information." Genetics in Medicine 11(8): 570-574 510.1097/GIM.1090b1013e3181a2743e.
  • Foster, M. W. and R. R. Sharp (2008). "The contractual genome: how direct-to-consumer genomic services may help patients take ownership of their DNA." Personalized Medicine 5(4): 399-404.
  • Foster, M. W. and R. R. Sharp (2008). "Out of sequence: How consumer genomics could displace clinical genetics." Nature Reviews Genetics 9(6): 419-419.
  • Gaines, A. (2005). Race: Local biology and culture in mind. Companion to Psychological Anthropology, Blackwell.
  • Gaines, A. (2006). "Alzheimer Disease, Aging, Chance and "Race"  " Journal of Philosophy, Psychiatry and Psychology 13(1): 83-85.
  • Gaines, A. and P. J. Whitehouse (2006). "Building a Mystery: Alzheimer Disease, Mild Cognitive Impairment and Beyond." Journal of Philosophy, Psychiatry and Psychology 13(1): 61-74.
  • Goddard, K. A., D. Duquette, et al. (2008). "Public Awareness and Use of Direct-to-Consumer Genetic Tests: Results From 3 State Population-Based Surveys, 2006." Am J Public Health.
  • Goddard, K. A., C. Moore, et al. (2007). "Awareness and use of direct-to-consumer nutrigenomic tests, United States, 2006." Genet Med 9(8): 510-517.
  • Goddard, K. A., J. Robitaille, et al. (2009). "Health-related direct-to-consumer genetic tests: a public health assessment and analysis of practices related to Internet-based tests for risk of thrombosis." Public Health Genomics 12(2): 92-104.
  • Goldenberg, A. and B. Wilfond (2009). "Pediatric biobanks: Approaching informed consent for continuing research after children grow up." The Journal of Pediatrics 155(4): 578-583.
  • Goldenberg, A. J., S. C. Hull, et al. (2010). "Patient Perspectives on Group Benefits and Harms in Genetic Research." Public Health Genomics.
  • Hoffman, S. (2005). "Is there a place for race as a legal concept?" Arizona State Law Journal 36: 1093 -.
  • Hoffman, S. (2005). ""Racially-tailored" medicine unraveled." Am Univ Law Rev 55(2): 395-452.
  • Hoffman, S. (2010). "Breach notification and the law." J Clin Ethics 21(1): 42-43.
  • Hoffman, S. (2010). "Electronic Health Records and Research: Privacy Versus Scientific Priorities." The American Journal of Bioethics 10(9): 19 - 20.
  • Hoffman, S. and J. W. Berg (2005). "The suitability of IRB liability." University of Pittsburgh Law Review 67: 2365-2427.
  • Hoffman, S. and A. Podgurski (2007). "In Sickness, Health, and Cyberspace: Protecting the Security of Electronic Private Health Information." Boston College Law Review 48(331).
  • Hoffman, S. and A. Podgurski (2007). "Securing the HIPAA Security Rule." Journal of Internet Law 10(1).
  • Hoffman, S. and A. Podgurski (2008). "Finding a Cure: The Case for Regulation and Oversight of Electronic Health Record Systems." Harvard Journal of Law & Technology 22(103).
  • Hoffman, S. and A. Podgurski (2011). "Meaningful Use and Certification of Health Information Technology: What about Safety?" The Journal of Law, Medicine & Ethics 39: 77-80.
  • Hull, S. C., R. R. Sharp, et al. (2008). "Patients' Views on Identifiability of Samples and Informed Consent for Genetic Research." American Journal of Bioethics 8(10): 62-70.
  • Huss, J. and E. T. Juengst (2010). "From metagenomics to the metagenome: Conceptual change and the rhetoric of translational genomic research." Genomics, Society, and Policy 5(3): 1-19.
  • International HapMap 3 Consortium, A. DM, et al. (2010). "Integrating common and rare genetic variation in diverse human populations." Nature 467(7311): 52-58.
  • Johnson, S., N. E. Kass, et al. (2005). "Disclosure of personal medical information: differences among parents and affected adults for genetic and nongenetic conditions." Genet Test 9(3): 269-280.
  • Juengst, E. (2006). Alter-ing the Human Species?  Misplaced Essentialism in Science Policy. The Ethics of Inheritable Genetic Modication. J. Rasko, O'Sullivan, G., Ankeny, R. Cambridge, UK, Cambridge University Press.
  • Juengst, E. (2006). Population-based Genetic Research and Screening: Conceptual and Ethical Issues. The Handbook of Bioethics. B. Steinbok, Oxford.
  • Juengst, E. (2007). Annotating the Moral Map of Enhancement: Gene Doping, the Limits of Medicine and the Spirit of Sport. Ethics, Geneics and the Future of sport: Implications of Gnetic Modification Selection. T. Murray. Washington, DC, Georgetown University Press.
  • Juengst, E. (2007). Genetic Testing and Screening: Population screening. The Encyclopedia of Bioethics. New York, MacMillan Pub Co. 3rd edition: 1007-1015.
  • Juengst, E. and A. Goldenberg (2007). Genetic diagnostic, pedigree and screening research. The Oxford Textbook on The Ethics of Clinical Research. E. Emanuel, Grady, C., Reidar, L Miller, F. Wendler, D.. Oxford University Press.
  • Juengst, E. T. (2004). "FACE facts: why human genetics will always provoke bioethics." J Law Med Ethics 32(2): 267-275, 191.
  • Juengst, E. T. (2009). Metagenomic Metaphors: New Images of the Human from ‘Translational’ Genomic Research. New Visions of Nature: Complexity and Authenticity. M. Drenthen, J. Keulartz and J. Proctor, Springer: 129-145.
  • Juengst, E. T. and H. Grankvist (2007). Ethical Issues in Human Gene Transfer: A Historical Overview. Principles of Health Care Ethics (Second Edition). R. E. Ashcroft, A. Dawson, H. Draper and J. R. McMillan: 789-796.
  • Kenney, N. J. and M. L. McGowan (2010). "Looking Back: Egg Donors’ Retrospective Evaluations of Their Motivations, Expectations and Experiences during Their First Donation Cycle." Fertility and Sterility 93(2): 455-466.
  • Landy, D. C. and R. R. Sharp (2010). "Examining the potential for exploitation by local intermediaries." The American journal of bioethics : AJOB 10(3): 12-13.
  • Lemke, A., M. Smith, et al. (2011). "Broad Data Sharing in Genetic Research:  Views of Institutional Review Board Professionals." IRB 33(3): 1-5.
  • Lemke, A. A., G. L. Wiesner, et al. (2010). "Attitudes toward genetic research review: results from a national survey of professionals involved in human subjects protection." J Empir Res Hum Res Ethics 5(1): 83-91.
  • Leppert, M., I. Matsuda, et al. (2007). "Community Engagement, Public Consultation, and Informed Consent in the International HapMap Project." Community Genetics 10(3): 186-198.
  • Lewis, M. H., A. Goldenberg, et al. (2011). "State Laws Regarding the Retention and Use of Residual Newborn Screening Blood Samples." Pediatrics 127(4): 703-712.
  • Marshall, P. (2004). "The individual and the community in international genetic research." Journal of Clinical Ethics 15(1): 76-86.
  • Marshall, P. (2005). Commentary: Research on Noma in Rural Nigeria. International Research Ethics: A Case Book. W. E. Lavery JV, Grady E, Emanuel EJ. New York, Oxford University Press.
  • Marshall, P. (2005). "Human rights, cultural pluralism and international health research." Theoretical Medicine and Bioethics 26(6): 529-557.
  • Marshall, P. (2006). "Commentary: Politics, Culture, and Governance in the Development of Prior informed Consent in Indigenous Communities: JP Rosenthal." Current Anthropology 47(1): 134-135.
  • Marshall, P. (2006). Ethical Issues in Research Design and Informed Consent to Biomedical and Social Research in Resource Poor Settings. Geneva, World Health Organization.
  • Marshall, P. (2006). "Informed consent in international health research." Journal of Empirical Research on Human-Research Ethics 1(1): 25-42.
  • Marshall, P. (2007). "Cultural Competence and Informed Consent in International Health Research." Cambridge Quarterly of Healthcare Ethics 17(2): 206-215.
  • Marshall, P. and J. Berg (2006). "Protecting Communities in Biomedical Research." American Journal of Bioethics 6(3): 28-29.
  • Marshall, P. A., C. A. Adebamowo, et al. (2006). "Voluntary Participation and Informed Consent to International Genetic Research." American Journal of Public Health 96(11): 1989-1995.
  • May, T. and M. P. Aulisio (2009). "Personal morality and professional obligations: rights of conscience and informed consent." Perspect Biol Med 52(1): 30-38.
  • McGowan, M. L. (2008). Producing Users of Preimplantation Genetic Diagnosis: Dominant and Marginalized Discourses in the US Context. Yearbook 2007 of the Institute for Advanced Studies on Science, Technology and Society. A. Bammé, G. Getzinger and B. Wieser. Munich and Vienna, Profil.: 95-110.
  • McGowan, M. L. (2010). Participation in investigational fertility preservation research: a feminist research ethics approach. Oncofertility: Reflections from the Humanities and Social Sciences. T. K. Woodruff, L. Zoloth, L. Campo-Engelstein and S. Rodriguez. New York, Springer. 156: 209-221.
  • McGowan, M. L., C. J. Burant, et al. (2009). "Patient education and informed consent for preimplantation genetic diagnosis: health literacy for genetics and assisted reproductive technology." Genet Med 11(9): 640-645.
  • McGowan, M. L., J. Fishman, et al. (2010). "Personal genomics and individual identities: motivations and moral imperatives of early users." New Genetics & Society 29(3): 261.
  • McGowan, M. L. and J. R. Fishman (2008). "Using Lessons Learned From BRCA Testing and Marketing: What Lies Ahead for Whole Genome Scanning Services." The American Journal of Bioethics 8(6): 18 - 20.
  • McGowan, M. L. and M. A. Lambrix (2009). "Are Social Networkers and Genome Testers One in the Same?: The Limitations of Public Opinion Research for Guiding Clinical Practice." The American Journal of Bioethics 9(6-7): 21-23.
  • Mehlman, M. (2010). Modern Eugenics and the Law. A Century of Eugenics in America: From the Indiana Experiment to the Human Genome Era. P. A. Lombardo, Indiana University Press.
  • Mehlman, M. J. (2005). "Genetic enhancement: plan now to act later." Kennedy Inst Ethics J 15(1): 77-82.
  • Mehlman, M. J. (2009). The Price of Perfection: Individualism and Society in the Era of Biomedical Enhancement. Baltimore, Johns Hopkins U. Press.
  • Mehlman, M. J., E. Banger, et al. (2006). "Doping in Sports and the Use of State Power." Saint Louis University Law Journal 50: 15–73.
  • Mehlman, M. J. and J. W. Berg (2008). "Human subjects protections in biomedical enhancement research: Assessing risk and benefit and obtaining informed consent." Journal of Law, Medicine and Ethics 36(3): 546-549.
  • Mehlman, M. J., J. W. Berg, et al. (2011). "Ethical and legal issues in enhancement research on human subjects." Cambridge quarterly of healthcare ethics : CQ : the international journal of healthcare ethics committees 20(1): 30-45.
  • Mehlman, M. J., R. H. Binstock, et al. (2004). "Anti-Aging Medicine: Can Consumers Be Better Protected?" The Gerontologist 44(3): 304-310.
  • Nagao, N., M. Aulisio, et al. (2008). "Clinical Ethics Consultation: Examining how American and Japanese experts analyze an Alzheimer's case." BMC Medical Ethics 9(1): 2.
  • Natowicz, M. (2005). "Newborn screening--setting evidence-based policy for protection." N Engl J Med 353(9): 867-870.
  • Natowicz, M., N. Kass, et al. (2007). "Access to Health Insurance: Experiences and Attitudes of those with Genetic versus Non-genetic Medical conditions." American Journal Medical Genetics 143A(7): 707-717.
  • Nordgren, A. and E. T. Juengst (2009). "Can genomics tell me who I am? Essentialistic rhetoric in direct-to-consumer DNA testing." New Genetics and Society 28(2): 157 - 172.
  • Rodriguez-Arias, D., G. Moutel, et al. (2007). "Advance directives and the family: French and American perspectives." Clin Ethics 2(3): 139-145.
  • Rothwell, E. W., R. A. Anderson, et al. (2011). "Concerns of Newborn Blood Screening Advisory Committee Members Regarding Storage and Use of Residual Newborn Screening Blood Spots." Am J Public Health.
  • Rotimi, C. and P. Marshall (2010). "Tailoring the process of informed consent in genetic and genomic research." Genome Medicine 2(3): 20.
  • Settersten Jr, R. A., M. A. Flatt, et al. (2008). "From the lab to the front line: How individual biogerontologists navigate their contested field." Journal of Aging Studies 22(4): 304-312.
  • Sharp, R. R. (2011). "Downsizing genomic medicine: approaching the ethical complexity of whole-genome sequencing by starting small." Genet Med 13(3): 191-194.
  • Sharp, R. R., J.-P. Achkar, et al. (2009). "Helping Patients Make Informed Choices About Probiotics: A Need for Research." Am J Gastroenterol 104(4): 809-813.
  • Sharp, R. R. and D. C. Landy (2010). "The financing of clinical genetics research by disease advocacy organizations: A review of funding disclosures in biomedical journals." Am J Med Genet A 152A(12): 3051-3056.
  • Sharp, R. R., M. L. McGowan, et al. (2010). "Moral attitudes and beliefs among couples pursuing PGD for sex selection." Reproductive BioMedicine Online 21(7): 838-847.
  • Simon, C., L. Acheson, et al. (2008). "Patient interest in recording family histories of cancer via the Internet." Genet Med 10(12): 895-902.
  • Smith, M. L., R. R. Sharp, et al. (2010). "Toward competency-based certification of clinical ethics consultants: a four-step process." The Journal of clinical ethics 21(1): 14-22.
  • Tarini, B. A., A. Goldenberg, et al. (2009). "Not without my Permission: Parents' Willingness to Permit Use of Newborn Screening Samples for Research." Public Health Genomics 11: 11.
  • Whitehouse, P. and D. George (2009). "The art of medicine: Banking on stories for healthier cognitive ageing." Lancet 373: 1166-1167.
  • Whitehouse, P. and E. Juengst (2005). "Anti-Aging Medicine and Mild Cognitive Impairment." Journal of the American Geriatrics Society 53(8): 1417-1422.
  • Whitehouse, P. J. and D. George (2010). "Protecting life and lives: putting gene research in context." Journal of Alzheimer's disease : JAD 20(2): 415-416.
  • Youngner, S. J. (2007). "The Stakes Are Not Very High in This Game." The American Journal of Bioethics 7(4): 42 - 43.