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THE CENTER FOR GENETIC RESEARCH ETHICS & LAW
 

CENTER DOCUMENTS

Miscellaneous Documents

 

•WCPN/NPR show on human enhancement with Jennifer Fishman, Eric Juengst, and Julian Savulescu (7/14/05)

•Human Enhancement Technologies: Through the Looking Glass of Drama
July 14 - July 17, 2005

• December 2-3, 2004 Washington Report

• Coalition for Genetic Fairness meeting about the Genetic Information Nondiscrimination Act of 2005 (S. 306) on February 22, 2005

• Secretary’s Advisory Committee on Human Research Protections (SACHRP)
U.S. Department of Health and Human Services on April 18, 2005

 

Presentations

 

2004

  1. Davis, D. (2004). What Do We Mean by Playing God? Ethical Reflections on Regenerative Medicine. Hong Kong Baptist University.
  2. Davis, D. (2004). Gay Gene? Religious and Policy Implications of a Possible Genetic Basis for Sexual Orientation. American Academy of Religion, Annual Meeting.
  3. Juengst, E. (2004). Ethical Issues in Community-based Genetic Research. Conference on Group Rights and Genetic Research. School of Law, Arizona State University, Phoenix, AZ.
  4. Juengst, E. (2004). Beyond Therapy And The Bioethics Of Enhancement Plenary Session. 6th Annual Meeting, American Society Of Bioethics And Humanities, Philadelphia, PA.
  5. Juengst, E. (2004). Altering human nature? Misplaced essentialism in international science policy, Symposium: Can human nature be ethically improved? Carnegie Council on Ethics and International Affairs, New York, NY.
  6. Juengst, E. (2004). Germline modification: For what purpose? Babies by design: Policy options for human germline genetic modification. Genetics and Public Policy Center, Johns Hopkins University, Washington, DC.
  7. Marshall, P., C. Rotimi, et al. (2004). Implications of International Genetic Research for Public Health: Global and Local Perspectives. Annual Meeting, International Association of Bioethics. Sydney, Australia.
  8. Marshall, P., C. Rotimi, et al. (2004). Engaging Communities for the International HapMap Project: Nigeria. Conference. The Biology of Genomes. Cold Spring Harbor Laboratory, Cold Spring Harbor, New York.
  9. Mehlman., M. (2004). Protecting human subjects in enhancement research. Case Western Reserve University Continuing Research Education Credit (CREC) Program, Cleveland, Ohio.

 

2005

 

  1. Binstock, R. H. (2005). Anti-Aging Medicine and Research. 6th annual conference of the Association of Health Care Journalists. Chapel Hill, North Carolina.
  2. Binstock, R. H. (2005). Anti-Aging Medicine and Science: The Politics of Presentation (Symposium title: The Societal Implications of Anti-Aging Medicine). 58th annual meeting of the Gerontological Society of America. Orlando, Florida.
  3. Binstock, R. H., J. Fishman, et al. (2005). Controlling Human Aging: Alternative Rationales and Implications. XIXth European Conference on Philosophy of Medicine and Health Care. Barcelona, Spain.
  4. Binstock, R. H., E. T. Juengst, et al. (2005). Controlling Human Aging: Alternative Rationales and Their Implications (Symposium title: Moral, Ethical, and Societal Implications of Increased Longevity. 58th annual meeting of the Gerontological Society of America. Orlando Florida.
  5. Davis, D. (2005). Genetic Research, Globalization, and Communal Narratives. CESAGen Conference, London.
  6. Davis, D. (2005). Research Ethics and Community Consent: Some Caveats. Westminster Law School Faculty Seminar.
  7. Davis, D. (2005). Genetic Ethics, Creation Stories, and Communal Narratives. PEALS (Policy, Ethics and Life Sciences), University of Newcastle.
  8. Davis, D. (2005). NIH Ethics Center Retreat (Panel on Enhancement), Wye River Plantation, MD.
  9. Davis, D. (2005). Genetic Research, Creation Stories, and Communal Narratives. Marlboro College Lyceum Series. Marlboro, VT.
  10. Davis, D. (2005). Identity and Community in International Genetic Research. guest lecturer in CWRU class on Ethics of Int’l Research, Cleveland, Ohio.
  11. Davis, D. (2005). Genetic Research in Social Context, Panel Participant. American Society of Bioethics and Humanities, Washington D.C.
  12. Davis, D. and V.-L. Nyitray (2005). Western and Confucian Perspectives on Cloning and Identity. American Academy of Religion Annual Meeting, Philadelphia.
  13. Hoffman, S. (2005). Is There A Place for Race As A Legal Concept? Case Center for Policy Studies Public Affairs Discussion Group, Case Western Reserve University, Cleveland, Ohio.
  14. Hoffman, S. (2005). Is There A Place for Race As A Medical Concept? CWRU Department of Genetics and Center for Human Genetics Clinical Genetics Rounds, Cleveland, Ohio.
  15. Hoffman, S. (2005). Racially-Tailored’ Medicine Unraveled. Works in Progress presentation at the Case Medical School Department of Bioethics, Cleveland, Ohio.
  16. Juengst, E. (2005). Genetic Privacy and Genetic Research Design. Mini-Symposium on Genetics & Ethics, Free University. Amsterdam, The Netherlands.
  17. Juengst, E. (2005). Ethical Issues in Genetic Research Design. University Hospitals Genetics Grand Rounds. Cleveland, OH.
  18. Juengst, E. (2005). Three Models of Benefit Sharing in Genetic Research. EDGE Course on Genetic Research Ethics. Cleveland Clinic Foundation, Cleveland, OH.
  19. Juengst, E. (2005). Beyond 'Vulnerability': The Growing Role of Patients,Volunteers, and Communities in the Design and Conduct of Biomedical Research, Societe Francais et Francophone d'Ethique Medicale, Paris, France.
  20. Juengst, E. (2005). Ethical Issues in Genetic Research Design. Genetics Grand Rounds, University Hospitals, Cleveland, OH.
  21. Juengst, E. (2005). Genetic Privacy and Genetic Research Design. Mini-Symposium on Genetics and Ethics, Free University, Amsterdam, The Netherlands.
  22. Juengst, E. (2005). Who Are Your People? Ethical Issues in Genetic Diversity Research, Department of Biology, Marquette University, Milwaukee, WI.
  23. Juengst, E. (2005). The concept of prevention in genetic medicine. First World Conference on Public Health Law and Ethics, Seoul, Korea.
  24. Marshall, P. (2005). Ethical Challenges in Public Health Genetics Research in Sub-Saharan Africa. International Congress Medical Law and 1st World Conference on Public Health Law and Ethics, Seoul, South Korea.
  25. Marshall, P. (2005). An Ethical Framework for Genetic Research in Sub-Saharan Africa. African Society of Human Genetics, Johannesburg, South Africa.
  26. Marshall, P. (2005). Ethical Issues in International Research: Focus on Informed Consent in Genetics Research. David Thomasma Named Lecture. Loyola University of Chicago Medical School.
  27. Mehlman, M. (2005). Risk/benefit analysis in bioenhancement research. Education in Genetics Ethics, Cleveland Clinic Foundation, Cleveland, Ohio.
  28. Mehlman, M. (2005). Protecting human subjects in bioenhancement research, Emory Schools Of Law and Medicine, Atlanta, Georgia.

 

2006

 

  1. Binstock, R. H. (2006). Anti-Aging Medicine and Science: An Arena of Conflict and Profound Implications. Distinguished Lecture for the Institute on Aging, University of North Carolina. Chapel Hill, North Carolina.
  2. Binstock, R. H. (2006). The Politics of Presentation: The Case of Anti-Aging Medicine and Science. Ethics, Institute of Science and Ethics. Bonn, Germany.
  3. Binstock, R. H. (2006). Anti-Aging Medicine and Science: Hype, Hope, and Implications. Armin Grams Memorial Lecture, University of Vermont. Burlington, Vermont.
  4. Binstock, R. H. (2006). Aging Well: Anti-Aging Medicine and Science. Harvard University. Cambridge, Massachusetts.
  5. Binstock, R. H. (2006). The Challenges of a Long-Lived Society (Keynote Speech). Living Longer: The Medical, Social, and Ethical Consequences, Xavier University. Cincinnati, Ohio.
  6. Binstock, R. H. (2006). Symposium: Anti-Aging Research: The Status Quo. 49th annual meeting of the Gerontological Society of America. Dallas, Texas.
  7. Binstock, R. H. (2006). Symposium: The Societal Implications of Anti-Aging Research. 49th annual meeting of the Gerontological Society of America. Dallas, Texas.
  8. Davis, D. (2006). Ashkenazi Jews: Overburdened and Overexposed? Conference on Race, Pharmaceuticals, and Medical Technology, MIT.
  9. Davis, D. (2006). Western and Confucian Perspectives on Human Reproductive Cloning. European Society of Medicine, Philosophy, and Humanities, Helsinki.
  10. Davis, D. (2006). Genetic Research, Communal Narratives, and Creation Stories. Finding the Genome, University of North Carolina, Chapel Hill
  11. Davis, D. (2006). Privacy in Genetic Research: A Cross-Cultural Context. Fogarty Center, NIH, and organized by the Medical School of the University of Pittsburgh, RML Hospital in New Delhi.
  12. Dressler, L. (2006). Ethical and Policy Issues in the Conduct of Genetic Research Studies in CALGB. CALGB 50th Anniversary Meeting. CRA Genetic Research Workshop. Chicago, IL.
  13. Dressler, L. (2006). Ethical Issues, Data Sharing, and the TCGA. NCI/NHGRI The Cancer Genome Atlas (TCGA) Project Data Sharing Workshop. New York City, NY.
  14. Dressler, L. (2006). Ethical Issues, Data Sharing and the TCGA, Invited talk. NCI/NHGRI The Cancer Genome Atlas(TCGA) Project Datasharing Workshop, New York City, NY.
  15. Dressler, L. (2006). Ethical and Policy Issues in the Conduct of Genetic Research Studies in CALGB. CALGB 50th Anniversary Meeting. CRA Genetic Research Workshop, Chicago, Il.
  16. Dressler, L. (2006). Ownership and Control of Human Specimens and Data: Ethical considerations and policy recommendations for research. Breast Cancer Grand Rounds, Massachusetts General Hospital.
  17. Fishman, J. (2006). Marketing and Policy Department, Invited Speaker, Weatherhead School of Management. Case Western Reserve University.
  18. Goddard, K. A. B., R. P. Igo, et al. (2006). More than you bargained for: unsolicited information in direct-to-consumer (DTC) genetic tests. Poster presented at the annual meetings of the American Society for Human Genetics, New Orleans, LA.
  19. Goldenberg, A. (2006). Public Health Genetics, Pharmacogenomics, and the Market. Bioethics 402/Foundations in bioethics Lecture, Cleveland, Ohio.
  20. Goldenberg, A. (2006). Ethical Issues in Genetics and Public Health. National Society of Genetic Counselors Annual Education Conference, Nashville, TN.
  21. Hoffman, S. (2006). Racially-Tailored’ Medicine Unraveled. Mather Spotlight Series on Women’s Scholarship Presentation, Cleveland, Ohio.
  22. Juengst, E. (2006). Ethical Issues in Disclosing Results of Genetics Research: An American Perspective. Instituto Superiore de Sante. Rome, Italy.
  23. Juengst, E. (2006). Ethical Issues in Pharmacogenomic Research Design. The Mayo Clinic. Rochester, WI.
  24. Juengst, E. (2006). So What's In It for Me? Information and Benefit Sharing in Genetic Research. Berman Center for Bioethics, John Hopkins University. Baltimore, MD.
  25. Juengst, E. (2006). Beyond 'Vulnerability': The Growing Role of Patients,Volunteers, and Communities in the Design and Conduct of Biomedical Research, Katholieke Universitat, Leuven, Belgium.
  26. Juengst, E. (2006). So What’s In It for Me? Information and Benefit Sharing in Genetic Research, Berman Center for Bioethics, Johns Hopkins University, Baltimore, MD.
  27. Juengst, E. (2006). Ethical Issues in Pharmacogenomic Research Design, The Mayo Clinic, Rochester, WI.
  28. Juengst, E. (2006). Ethical Issues in Disclosing Results of Genetics Research: An American Perspective, Instituto Superiore de Sante, Rome, Italy.
  29. Juengst, E. (2006). Beyond testing: Policy considerations for safe and effective genetic interventions, University of Minnesota, Minneapolis, MN.
  30. Juengst, E. (2006). Unnatural appeals in Bioethics, The Hastings Center, Garrison, NY.
  31. Juengst, E. (2006). Annotating the moral map of enhancement: Gene doping, the limits of medicine and the spirit of sport, The Hastings Center, Garrison, NY.
  32. Marshall, P. (2006). Ethical Challenges in International Research: Focus on Communities and Individuals. National Conference on Development of Nigerian Guidelines for Ethical Conduct in Research, Abuja, Nigeria.
  33. Marshall, P. (2006). Ethical Challenges in International Health Research. Invited Lecture. Deemer Symposium on Global Health Justice, Hiram College, Hiram, Ohio.
  34. Powers, P. (2006). Mortal Presence: The Imperative of Vulnerability in a Genomics Age. 20th Anniversary of the European Association of Centers for Medical Ethics.
  35. Powers, P. (2006). The Importance of Vulnerability for Bioethics. International Association of Bioethics, 8th World Congress of Bioethics, Beijing, China.
  36. Powers, P. (2006). Ignatian Spirituality and Ethics. Novena Reflection, Gesu Parish, University Heights, OH.
  37. Powers, P. and J. T. Bretzke (2006). Convener: Killing or Letting Die? Interpreting Recent Catholic Magisterial Teaching on End-Of-Life Issues. Society of Christian Ethics Annual Meeting, University of San Francisco.
  38. Quinn Griffin, M. T., J. Cassano, et al. (2006). Recruiters’ Perceptions of Ethical Issues in Genetic Research. International Society of Nurses in Genetics Annual Conference, New Orleans.
  39. Quinn Griffin, M. T., W. Winkleman, et al. (2006). Enrollment and Privacy Issues in Genetic Family Research. National State of the Science Congress in Nursing Research. Washington DC.

 

2007

 

  1. Davis, D. (2007). Public Bioethics across the Pond. Hastings Center Bieothics Forum.
  2. Dressler, L. (2007). Research Regulators’ Concerns with Access and Use of Open-Source Genetic Research Data. ASHG Panel Discussion: DNA as a Unique Identifier: Privacy, Trust, and the Future of Genomic Biorepositories: .
  3. Dressler, L. (2007). Disclosure of results from genetic research studies: ethical, legal and policy challenges in the new millennium. 17th Annual National Interdisciplinary Breast Conference.
  4. Dressler, L. (2007). DNA as a Unique Identifier: Privacy, Trust, and the Future of Genomic Biorepositories. ASHG Panel Discussion.
  5. Dressler, L. (2007). Disclosure of Results from Genetic Research Studies: Ethical, Legal and Policy Challenges in the New Millennium. 17th Annual National Interdisciplinary Breast Conference, Las Vegas, NV.
  6. Goldenberg, A. (2007). Public Health Genetics, Pharmacogenomics, and the Market. Bioethics 402/Foundations in Bioethics Lecture.
  7. Goldenberg, A. (2007). Use of Newborn Screening Bloodspots for Genetic Research. European Conference on Philosophy of Medicine and Health Care, Cardiff, United Kingdom.
  8. Grankvist, H. (2007). Tales From The Frontier:An Empirical Study of Ethical Issues inHuman Gene Transfer Research. Works-in-Progress Seminar (Department of Bioethics, Case Western Reserve University). Cleveland, OH.
  9. Hoffman, S. (2007). Racially-Tailored’ Medicine Unraveled. Georgia State University College of Law Faculty Workshop, Atlanta, Georgia.
  10. Hoffman, S. (2007). Racially-Tailored Medicine: Troubled History, Current Controversy. Georgia State University College of Law public talk, Atlanta, Georgia.
  11. Juengst, E. (2007). Living with the Grail: Ethical and Social Issues in Large Scale Genomic Research, University of North Carolina, Chapel Hill, NC.
  12. Kittles, R. (2007). The relationship between Race, Ancestry and Genetics: implications for biomedical research, Invited Speaker. Case Western Reserve University, Race in Research Invited Speaker Series, Cleveland, Ohio.
  13. Powers, P. (2007). A Call to Arms or Apocalypse Now? Medical Research and Enhancing the Warfighter: Ethical and Theological Perspectives, St. Mary’s University (San Antonio), Department of Theology.
  14. Quinn Griffin, M. T., W. Winkleman, et al. (2007). Genetic Family Research: Enrollment and Privacy Issues. International Society of Nurses in Genetics. Bristol, England.
  15. Quinn Griffin, M. T., W. Winkleman, et al. (2007). Enrollment and Privacy Issues in Genetic Family Research. Research Showcase. Cleveland, OH.
  16. Roach, A. (2007). Tales From The Frontier:An Empirical Study of Ethical Issues inHuman Gene Transfer Research. CGREAL Brown Bag Seminar (Department of Bioethics, Case Western Reserve University). Cleveland, OH.
  17. Wiesner, G. L. (2007). (Co-Moderator) DNA as a Unique Identifier: Privacy, Trust, and the Future of Genomic Biorepositories. ASHG.
  18. Zuckerman, S. (2007). Issues in Expansion of Newborn Screening in Israel: Baby Steps Towards an Analysis. Works-in-Progress Seminar (Department of Bioethics, Case Western Reserve University). Cleveland, OH.
  19. Marshall, P., S. Zuckerman, et al. (2007) Interdisciplinary Perspectives on Genetic Research: Autonomy, Identity, Paternity. ASBH .