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Under the leadership of Georgia Wiesner, this group focuses on developing and conducting studies to increase our understanding of the research ethics surrounding genetic family studies.
On-going Projects Include:
- Analytic review of literature on recruitment/consent for family studies
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- Policy analysis of “returning results” issues
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- Analysis of literature on “third party” issues
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- Local Study Survey of Enrollment & Privacy Issues in Genetic Family Studies
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- National survey of Enrollment & Privacy Issues in Genetic Family Studies
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- Survey of IRB Issues in Genetic Family Studies
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- Empirical study of issues in internet-based family history collection
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- Empirical Study to understand factors that influence the use of tumor-based genomic testing
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Under the leadership of Patricia Marshall, this research group conducts comparative empirical studies and ethical analyses of the design and conduct of population, disease group, and community-based genetic research.
On-going Projects include:
- Analytic review of literature re: community consultation for genetic research
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- Case studies of research practices re: group-based genetic research
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- Empirical study: community attitudes: genetics, community, biobanking
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- Multi-site study: public consultation genomic research
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- Health disparities and genomic research
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- Consent for gen-epi family studies: African-American families
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Under the leadership of Dena S. Davis, this research group examines issues of personal and group identity that arise in population-based genetic research.
On-going Projects include:
- Empirical study of lay attitudes on population identity
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- Legal analysis of role of “race” concepts in the law
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- Regulatory analysis of FDA approval of BiDil
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- Race in Research Project: how the race construct is used in science and society:
- Workshop
- InterCEER, inter-disciplinary collaboration
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- Lost Tribe of Bnei Menashe
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- Retrospective analysis of the use of “race” in medical textbooks
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- Conceptual analysis of reciprocal influence of genomics and racial/ethnic categories
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Under the leadership of Eric Kodish, this research group will conduct empirical research to identify the research ethics challenges posed by newer approaches to genome-wide analysis in human genetic research.
On-going Projects include:
- Empirical study of Biobank Recruiters’ concerns
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- Empirical study of clinical trial Recruiters’ genetic research concerns
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- Policy analysis for the use of stored newborn bloodspots for genetic research
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- Feasibility study for creating a “Storybank” to complement the “Cleveland Regional Biobank”
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- Understanding and attitudes of IRBs towards OSSR
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- Understanding and Attitudes of human subjects research recruiters towards OSSR
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Led by Jennifer Fishman, this group will conduct empirical, ethical/legal, and health policy studies of the issues raised by the early commercialization of genetic research ideas and tools.
On-going Projects include:
- Empirical study of attitudes of genomic scientists and trainees towards commercialization
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- Empirical study of “recreational” direct-to-consumer genetic tests
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- Empirical study of direct-to-consumer medical genetic tests
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- Statistical analysis of direct-to-consumer test claims
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- Empirical Study to understand factors that influence the use of tumor-based genomic testing
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Under the leadership of Maxwell Mehlman, this group undertakes ethical, legal, and science policy studies of issues raised by research attempting to apply genetic knowledge to improve upon non-pathological human traits such as intelligence, aging, altruism, or athletic performance.
On-going Projects include:
These grants are designed to help Case faculty from disciplines and communities that have been previously under-represented in scholarship on genetic research ethics examine questions related to CGREAL’s mission. They are designed to support exploratory efforts towards the development of larger scholarly projects or lines of research.
On-going Projects include:
- Patient perspectives toward sharing family medical histories over the Internet
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- StoryBank
A Resource for Studying the Impact of Narrative on Health
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- Direct-to-Consumer Genetic Tests
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- A Pilot Study Assessing the Status of Informed Consent for Preimplantation Genetic Diagnosis
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