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Aaron J. Goldenberg , Ph.D., M.P.H.
Assistant Professor of
Bioethics
Assistant Director, Center for Genetic Research Ethics and Law
Assistant Director, Bioethics Master's Program
Ethical Issues of Human Genetics
Public Health Ethics
Health Disparities
Ethics of Newborn Screening
Use of Stored Biological Samples for Research
e-mail: aaron.goldenberg@case.edu
NIH Biosketch
Center for Genetic Research Ethics and Law
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Bio
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Aaron Goldenberg is an Assistant Professor in the Department of Bioethics at Case Western Reserve University (CWRU). He is also Assistant Director of the Center for Genetic Research Ethics and Law and Assistant Director of the Department’s Master’s Program. Aaron received his BS in Science and Technology Studies from the Lyman Briggs Program at Michigan State University. He also has an MA in Bioethics from Case Western Reserve and an MPH in Health Education and Public Health Genetics from the University of Michigan. Dr. Goldenberg received his PhD in Bioethics from Case Western Reserve in 2009. Before beginning his PhD training, Aaron was the Center Manager for the University of Michigan’s Center for Genomics and Public Health, and spent a summer as a fellow at the National Institutes of Health, working with the Secretary’s Advisory Committee on Genetic Testing.
Dr. Goldenberg’s work focuses on the ethical and social issues surrounding advances in public health genomics, biobanking, health disparities, and the intersection between bioethics and public health ethics. His dissertation focused on the ethical issues surrounding the use of Michigan's residual newborn screening bloodspots for research purposes. Recently, he has been working on a number of projects related to the use of biobanked pediatric samples for genetic research, the use of stored tissues from recently deceased individuals for gene-tissue expression studies (GTEX), and public attitudes towards the use of genetic research to address health disparities.
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Recent Publications
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Goldenberg AJ, Hull AC, Botkin JR, Wilfond BS. Pediatric Biobanks: Approaching Informed Consent for Continuing Research After Children Grow Up. The Journal of Pediatrics, 155 (4), 578-583.e13.
Tarini BA, Goldenberg A, Singer D, Clark SJ, Butchart A, Davis MM. Not without my Permission: Parents' Willingness to Permit Use of Newborn Screening Samples for Research. Public Health Genomics. 2009;11:11.
Juengst, E. and A. Goldenberg (2008). Genetic diagnostic, pedigree and screening research. In The Oxford Textbook on The Ethics of Clinical Research. E. Emanuel, C. Grady, L. Reidar, F. Miller, D. Wendler, (eds.) Oxford University Press.
Bodzin J, Kardia SLR, Goldenberg A, Raup SF, Bach JV, Citrin T. Genomics and public health: development of Web-based training tools for increasing genomic awareness. Prevention of Chronic Disease vol. 2 [serial online] 2005 April.
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Recent Activities
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Ethical and Policy Implications of Using Newborn Screening Bloodpsots for Research, Data Collection and Specimen Storage: How Do We Talk About Blood Spots?, Genetic Alliance Annual Meeting, Washington DC, 2009
Use of Previously Collected Biological Samples for Genetic Research, Ethical Issues, Presenter on Biobank Boundaries: Emerging Issues for Translational Genomic Research Panel, Genetics & Ethics in the 21st Century 13th Annual Conference, Breckenridge, CO, 2009.
Genetics and Health Disparities: Implications for Research and Practice, Case Western Reserve University, Cleveland, OH, 2009.
Visiting Scholar, The Brocher Foundation, Geneva Switzerland, 2008. Project Title: Implications of Biobanks on Social Groups: An Analysis of European and US Stored Sample Policies.
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Contact Information
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Aaron J. Goldenberg, Ph.D., M.P.H.
Assistant Professor of Bioethics
Case Western Reserve University
10900 Euclid Avenue
Cleveland OH 44106-4976
Office: 216-368-8729
FAX: 216-368-8713
email:aaron.goldenberg@case.edu
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